Forms

 

 

 

    • Application form for the settlement under an Orphan Disease position of the analysis list DE | FR | IT

 

    • Application form for the settlement under an Orphan Disease position of the analysis list (electronic file) DE | FR | IT

 

    • List of the FMH experts of SGMG to check the Orphan applications DE | FR

 

 

 

 

Recommendations

Note of the SSMG: The SSMG advises that the recommendations of the ESHG are not consistent with the Swiss law on genetic testing of humans (GUMG) in all points. Obviously, the latter is legally binding in Switzerland. Please note: The GUMG (Art. 10 Par. 2) protects the right of self-determination for individuals with a legal incapacity independent of their age while the ESHG refers to minors. Furthermore, the paragraph applies in Switzerland to all types of genetic tests whereas the ESHG excludes genetic screening as well as susceptibility testing for multifactorial diseases. Finally, genetic testing of individuals with a legal incapacity in Switzerland is only approved if it is necessary to protect their health while the ESHG refers to a direct benefit.